Clinical /Transplant Care
Cystic fibrosis clinics provide specialized outpatient care for CF patients. In Canada, there are clinics in most major cities, all located in a hospital setting, and often associated with a university. The care delivered is mostly medical, but may also involve psychosocial support. Some CF clinics serve only children, some serve only adults, and some care for those of all ages.
Various health care professionals deliver quality care to patients, at every scheduled clinic visit. Each clinic team includes a medical director and clinic coordinator; in addition, other multidisciplinary team members include a physiotherapist, social worker, dietician, and may also include a pharmacist, nurse, respiratory technician, psychologist and other sub-specialists.
Through its Clinic Incentive grant program, the CCFF provides supplementary funding to CF clinics, based on the number of CF patients served. Basic clinical care is the responsibility of each provincial government; funds from the CCFF are intended to enhance the standard of clinical care available to Canadians with cystic fibrosis, by providing funds to initiate a comprehensive program for CF patient care, research, and teaching; or to strengthen an existing program.
Quality assurance and consistency of care are achieved across Canada, through the CCFF's clinic site visit program. Each centre is visited, on a four- to seven-year cycle, by two past or current members of the CCFF Clinic Subcommittee. During each full-day visit, the site reviewers discuss with the personnel of the clinic, care philosophies and delivery methods across Canada, as they relate to that clinic. By accepting a Clinic Incentive grant, each clinic agrees to take part in the site visit program, and participate in the information exchange which it encourages-all team members are involved, in addition to hospital administrators and laboratory technicians.
There are five centres in Canada, which offer lung transplant services for individuals with end-stage CF. Working a similar format to the CF clinics, the lung transplant centres deliver care through a multidisciplinary team of health care professionals, who are all focussed on the special needs of those involved with lung transplantation. As with the CF clinics, the CCFF provides supplementary funding to the lung transplant centres, through the Transplant Centre Incentive grant program, in order to ensure that valuable medical services are available to the CF population.
For more information on the Clinic Incentive grant and the Transplant Centre Incentive grant programs; please refer to the Grants & Awards Page.
Structure of the Medical/Scientific Advisory Committee (M/SAC):
The responsibility for making recommendations concerning the Foundation's medical and scientific program rests with the Medical/Scientific Advisory Committee (M/SAC). M/SAC is comprised of up to 20 outstanding scientists and clinicians with special expertise in biochemistry, genetics, microbiology, respirology, gastroenterology, paediatrics, infectious diseases, and clinical care.
M/SAC represents the combined knowledge of persons whose work is at the cutting edge of CF care and research. The Committee members volunteer hundreds of hours of work for the Foundation to ensure a balanced, cost-efficient, and highly effective front-line assault on cystic fibrosis.
Each research grant application is carefully reviewed by both the Committee and outside specialists from Canada and around the world. Only the most promising projects receive a recommendation for funding from the Committee.